10 March 2014

A Magical Night.



I feel like all of our posts had been full of doom and gloom but to be honest these last few weeks have also been some of the best days of our lives. In the midst of total chaos we have also be blessed with so much love and support from our family and friends. People have done so many kind things for our little Rylie- each little gift she has received has literally been something she has fallen totally in love with-she literally has not stopped smiling. She is one lucky little girl!

This past weekend my sweet aunt and uncle invited us to attend Disney on Ice with their family. If you know Rylie is was a BIG Deal! She LOVE, LOVE, LOVES Mickey Mouse. It was a magical night. I am pretty sure she smiled all night long- it was easily the best night of her sweet little life! She ran around the rest of the weekend asking everyone to take her back to Mickey Mouse!










Such an amazing night with our family-Thank you for taking us Harvey Family! 

05 March 2014

Save the Dates!


I know you all are probably waiting on an update from our oncology appointment and truth be told so are we... the medical staff up at Primary Children's Hospital is in the process of reviewing her case and hopefully we will have an update tomorrow. 

Now to the nuts and bolts of today's post...National Tea for NF Day is exactly 2 months away! So it's time to mark your calendars and get ready for some fun NF events. 

As we have mentioned in a few of our previous posts we are excited to help the Children's Tumor Foundation raise money for NF research this year! We have joined the local NF chapter and we are excited to help them organize this years events! 

2014 Event Dates:
National Tea for NF Day.  Mon. May. 5
Utah NF Walk. Sat. Aug. 23

If you are interested in receiving an invitation to these events please feel free to contact us at any time. 

You can register for the NF Walk on our teams website  http://ctf.kintera.org/faf/search/searchTeamPart.asp?ievent=1100567&lis=1&kntae1100567=B65BEF31F54849148A1FE5C59FECD20C&team=5860317