Wednesday we got the call from Rylie's doctors
and we have put a plan in place. We are going to hold off treatment for 3
months and do repeat tests at the end of May/ beginning of June. This will
allow the doctors a chance to see if the tumor is growing and if it is how fast
it is growing. After that, we will meet with all of the doctors and re-evaluate
and either repeat the same tests in another 3 months or start on a treatment
plan.
The hope is the tumor will not grow. Some NF
tumors appear and never grow and while this would be the best-case scenario we
will be prepared for other scenarios.
We are a little nervous about waiting for all
of the obvious reasons but we know in the long run it will be more beneficial
to Rylie. We are not losing anything by waiting a few more months, in fact we
are gaining. Rylie will be older, stronger and more capable of fighting her way
through a chemo treatment if need be. Please keep our sweet girl in your
thoughts and prayers- she is in for a very long year but with your support she
will make it to the other side!
Upcoming Appointments:
May 6- Well Baby Check Up
May 27- Ophthalmology Exam
June 2- MRI/Lab work
June 2- Oncology
Exam
June 4- Genetics
Exam
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