A family friend sent me this article this
afternoon---Hits a little too close to home. A great article that is pretty
insightful on what this NF diagnosis has meant to our family and what it will
mean for us in the future.
It pains my heart to know there are other
families going through the same thing. Hopefully, one day we will be able to
find a cure for NF so no other children have to suffer the way Rylie suffers,
so no other family has to worry about hospital visits, and binders to keep
everything organized. One day……..
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