Chemotherapy- Course 5

Round 5 of Chemotherapy is in the bag… only 7 more to go!!! most times it seems like  time is standing still, other times we feel like we have been on this journey forever, like its just part of our routine. Yesterday was one of those days. In just five months Rylie has come so far. Yesterday she was accessed and de-accessed with absolutely NO tears!!! Most of you know getting accessed has been a huge source of stress for Rylie. She screams, cries, and fights with all of her power to get away from the nurses. She hates it, until recently she wouldn't even show an adult her port out of fear they were going to touch it. 
But in the last month she has made progress in leaps and bounds, even going as far as showing off her "princess port" to anyone and everyone that wants to see it. and yesterday, it seems like all of the stress and teaching has paid off. There was no fighting, no tears… she just jumped up on our lap like the little rock star she is and was accessed like it was nothing. I think we were all in shock… while we are hoping this is a new normal we know this process is extremely painful and scary for her and regardless of what happens next time we are so proud of her and how far she has come! 

 iPad Games with Daddy

 They had a lot of problems getting Rylie's port to cooperate yesterday so she had to have her arms in the air a ton… i think she thought it was a fun little game :) Thank heavens for awesome nurses! 

 Crackers and cheesy smiles 

 Such a Big Girl- Our NF Hero! 

She kicked round #5 right in the butt! Good Job Rylie Bug! 

Reminder… cold and flu season is quickly approaching. Help those you love stay save this winter by getting the flu vaccination. While no one enjoys getting a shot, these vaccinations are life saving for a child like Rylie. We will be getting ours at the end of the month… make sure to schedule your appointment as well!