03 July 2014

Ophthalmology Visit


Ladybug had her monthly visit with the ophthalmologist yesterday and, we’re going to call this visit a win(we will take a small victory any day)

We spoke with Dr. Hoffman and there has been no change in the tumor in either the positive or negative direction from what we can see. Keeping in mind this is not an in depth view of Rylie's optic never. for obvious reasons an eye doctor can only see so much, to get a better look we will need another MRI. We will have and MRI and another VEP test next month and that will really give us the answers we need. If all goes as we are hoping the tumor will have stopped growing, which will mean this treatment plan is working!!! We are crossing our fingers and praying the next 30 days go by quickly so we can hopefully receive some more good news! 

Rylie, of course was amazing yesterday. We get comments all the time from the doctors and nurses telling us how smart and intuitive she is. To see her at these appointments are some of the proudest and saddest moments we have ever experienced as parents. As soon as we make out way up to the university Rylie knows where we are going. We talk about the doctors and tell her what to expect before hand so hopefully nothing surprises her too much and catches her off guard. It seems the more she knows the more she feels at ease. She's a bit of a control freak, much like her momma. To watch your baby sit there and follow instructions makes her look so grown up. You feel proud knowing the things we are trying to teach her are sinking in but it also breaks your heart that at such a young age she has to endure so much. But, there she sits. Smiling and doing exactly what she is told. We get minimal fights from her. I think she's figured out the less fighting she does the quicker we go home. :) She truly is our little hero! 


  {This is the face I get when I tell her to stop playing with all the medical equipment}


Well folks, we are off to join our friends and family for some summer fun before chemo on Monday. We hope you all have a safe and happy 4th of July! 

2 comments:

  1. Awww! Will you look at brave little Rylie heading strong on that visit to the ophthalmologist. I'm glad that she did really well and that everything seems to be turning out fine. Anyway, I'll be praying that the treatment plan she is currently receiving continues to work on her. I believe life will be good to her, and she deserves all the best things. Thanks for sharing that! All the best!

    Jennifer Bell @ Find Clarity Vision

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  2. I can only imagine how you felt through this encounter – you must’ve been so proud, though a little scared for her. Nonetheless, it seems like she managed to go through it well enough, and even seem to have actually enjoyed her visit. Thanks for sharing this with us, Brandie. Have a great day!


    Doris Gibbs @ Moody Eyes

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