Chemo #6 is all done folks!!! We are
officially half way through the toughest year of our lives!!! Yep, happy dance
all around!
Rylie is doing amazingly well with
chemo! She has formed a pretty special bond with her oncology team and each
visit is becoming a little bit easier for all of us. It's seems like just
yesterday we started this journey but to sit back and watch just how far she
has come, your able to get a little perspective and see just how grown up our
baby really is!
Rylie has experienced no new side
affects with chemo and we seem to have found a good mix of medications and
homeopathic remedies to aid her during the days of dreaded mouth sores, upset
tummy days, diarrhea, and horrendous diaper rash! Slowly but surely we are
figuring things out and coping the best way we know how!
PCH has the BEST nurses EVER!
Always claiming "her" kitchen and Grocery cart ;0
This month we actually got quite a
few smiles during her infusion... No surprise there. Daddy was off on a big
hunting trip (don’t worry she told everyone over and over and over again where
he was) so Aunt Jody joined us this time and she always knows just how to make
her smile! When daddy isn’t able to make it taking others with us seems to be a
little bit of a treat for her, a welcome distraction for all of us!
Always LOTS of fun with aunt Jody!
Calm before the storm… The flu shot defiantly did not go over well...
Next month is a big month for
Ladybug. We have a bunch of tests scheduled to check out where Rylie is at this
point in her treatment! We are remaining hopeful the tumor will shrink but we
have to stay realistic in knowing that may not happen. Optic nerve Gliomas are
low- grade tumors and the chances that Rylie’s tumor never shrinks is a very
real possibility. At this point we pray just keep praying for stability and no
changes in the negative direction. In the mean time we will continue to enjoy
our days off from the hospital and rest up for a very busy November!
Resting at home… such a strong girl!
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