15 October 2014

Ophthalmology Vist- VEP Testing


Octobers round of eye exams and tests and done (Thank Goodness)! Our sweet girl had a little bit of a rough start to the day but she pulled through and did pretty amazing towards the end.

Of all the things Rylie has to go through every month she seems to hate the VEP testing the most. It's a fairly simple test. No pokes, no meds, just some cream on her ears and light up goggles! But... Nonetheless she HATES this test! The test itself only takes about 60 seconds but once those goggles come out the freak out begins! She hates those damn goggles!!! As soon as the doctor grabs them her anxiety level soars through the roof! As frustrating as it may be you can't blame her... This is some scary stuff. I can't imagine the thoughts that run through her sweet little head. I wish we could take all the anxiety and fear away. This session seemed to be especially difficult. She just had a really rough time this go round, having daddy gone never sits well with her! Thank goodness Aunt Christy was there to help ease some of her fears and calm a super anxious mommy. We weren't able to get a good reading from the VEP test this go round but it appears as if nothing has changed. We will repeat the test again next month and go from there…

After the VEP test we headed on over to see Dr. Hoffman. No shortage of smiles there! His staff is amazing and always spoils Rylie rotten. Games, movies, books, and snacks... All of her favorite things! She pretty much has the routine down so nothing too dramatic happens to surprise her while we're there... She still hates getting the dilating drops in her eyes but you can’t really blame her.

Dr. Hoffman worked his magic and got a pretty good look at Rylie's eyes this go round. Her swelling in the left eye has continued to decrease and the tumor remains stable, showing no obvious growth. Pretty good news on all fronts! The only downer from this visit was scheduling another surgery... Because of the tumors rapid growth Rylie has some problems with ingrown lower eyelashes and a blocked tear duct in her left eye. Small in comparison to the major issues we're dealing with but it's another surgery nonetheless so were a little worried about how she will handle things with this being her first surgery since starting chemo... So, cross your fingers, say a few extra prayers, and hope that November 6th the stars align and our beautiful girl comes out of surgery happier and healthier!


It's always playtime for a 2 year old! 

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