My, oh my how things change so
quickly. Our poor sweet girl just can't catch a break! First we had a
complication with surgery on Thursday… a scratched cornea lead to some painful
hours for our little gal. Then she was up and ready to start chemo and tackle
another day. She recovered quickly and seemed to be on the mend Monday night.
She was happily watching movies, playing babies and kitchen with daddy while I
went grocery shopping and cooked some dinner. Around 5pm things took a drastic
change… Rylie became very clingy. She moaned and cried non-stop for about an
hour. After trying to get her to rest and relax for a little bit we decided we
needed to check her temperature. 102.4! We freaked out. At 101 we are supposed to head
straight to the hospital, no calls… just go! So, after a little bit of
panicking we changed the thermometer batteries and checked her again… 102.6! Brett grabbed the baby and feverishly started
packing some of her things while I called the on call oncologist… We had to be wrong. There was no way it was that high…..Wrong! they told us
to get in the car and head to the ER! We were completely panicked. Rylie has
never had a fever… NEVER! Not when she gets sick, not when she had ear
infections or when she was teething… she just never runs a fever! Knowing she
had a fever scared the crap out of us. Our hearts sank… we just knew something
was wrong…
The 15-minute drive to the
hospital seemed to take forever. Sitting in the back seat watching her become
less and less responsive sent shear terror through my body. I just kept waiving
the bright lights of my phone in her face begging her to keep talking to me.
She had no interest. We pulled into the parking lot and ran into the ER lobby. Rylie
had already been pre-admitted so they got to us quickly. Took another set of
vitals… her heart rate was low and her temperature had soared to 103.8! The nurses explained to us that Rylie was in what
they call a pre-shock status so they were going to rush her back and get her
fluids and antibiotics quickly so things don’t get worse! If her port was infected we had to kick this thing quickly! It was so
intimidating seeing a room full of people all working so fast to get her the
things she needed. One was accessing her port, another was preparing some
Tylenol, a third was hooking up the fluids and antibiotics, a Nurse
practitioner was taking another set of vitals… there were so many people we
missed the resident and attending physicians coming in to check her out. It was
insanity! They worked so quickly… if it weren’t for all of them working so fast
and efficiently I would hate to think what would have happened if we didn’t
luck out and get the team we had that night! Once she was a little bit more
stable they were able to draw some more labs to see how her counts were. In
less than 24 hours her White Blood Cell (WBC) counts had dropped from 7.7 to 3.8.
A pretty drastic drop for just a few hours… Her WBC is what helps her fight off
infection so once we heard how drastically her counts had dropped we were
relived to see how quickly they had worked to get her fluids and antibiotics!
It was the longest 24 hours of
our lives. A constant struggle of making sure every 4 hours her meds were given
so the fever didn’t return. Begging her to eat or drink something, anything to
keep her strength and a few more doses of fluids and antibiotics to help her
fight off whatever was coming her way. Finally, around 10pm last night she
finally seemed to kick the fever. She got a good nights rest and woke up ready
to play. Hopefully, we can get her counts up a little bit before next week’s
lockdown.
THANK YOU to everyone for your continued support and
prayers. We are so thankful and blessed to have each and every one of you
supporting us on this difficult journey!
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