19 May 2014

Chemotherapy- Course 1.0

The morning of May 8, 2014 at just before 9am Rylie received her first round of Chemotherapy. The entire process took about 6 hours so of course she needed all her favorites...Toby, Baby, Minnie Mouse, and Daddy! 


The entire process took about 6 hours. First up she received her first does of Vincristine. This is the "easy" drug. Just a quick shot and were good to go. Because of the port Rylie felt nothing at all and just snuggled up with daddy and watched Frozen. 



Next up she started her Carboplatin. That one is the doozy! It takes about 1 hour and 15 minutes for her to received and then after that she gets 4 hours of IV Fluids to make sure her kidneys are flushed out and working properly. This is also the drug that causes us the most stress... this one makes her sick, can give her problems with her kidneys, and just plain ol' sucks! She handled things really well. The nurses were very proactive and great with starting her on Zofran before we started chemo so she didn't get sick just suffered from a bit of nausea and exhaustion. Luckily, she was still pretty drugged up from surgery so she just kind of laid there and took everything in stride. I think Brett and I mentally prepared for some graphic scene like you see in the movies but that just was not the case. I mean she wasn't feeling great but I think the nurses try and do their best to make sure the kiddos are as comfortable as possible before they start. We were blessed with some really sweet nurses so that definitely helped the process! 

After just over 48 hours in the hospital Rylie's first round of treatment was complete! She did it! She made it through like a rock star! 

Getting her port de-accessed so we can head home!

Then we were sent home with this... our chemotherapy bible. A book FULL of information (All of which they quizzed us on before we left the hospital)! We were sent home to read, review, and re-read all the materials and make sure we are prepared to live the next 12 months in complete and total fear...

NO Groups of 10 or More
NO fast food restaurants 
NO Soda Fountains
NO public places



Oh yea, and then there is the massive amounts of medications and medical supplies to keep track of...


It's a lot to get use to and were having to make a lot of changes around the house but we are slowly getting there, one day at a time, one foot in front of the other. 

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