Rylie completed her last chemo session
for this month {{{ Happy Dance }}}
This month we started on a journey no parent ever
wants to take. We checked our baby girl into the hospital and started on a 12
month journey into the deep dark unknown... Yesterday was a little bit of a
tough day. We try and make chemo days as enjoyable as we can. Hospital Visits
are special days and we try and treat them as such... something sweet always seems to make her smile...she's a girl so
of course she likes anything with sugar!
After chemo Rylie's appetite waivers quite a bit
(were down a 1/2 pound this month already) so in the morning we decided to stop off for
a donut and some chocolate milk. This girl cracks me up. She is quite the
conversationalist now -she just chats and chats and tells you all about her
friends and her toys. But today, man she jumped head first into that
strawberries and cream donut! By the time she was done she was covered in
frosting from her head to her toes...But she was happy so I was happy!
After our donut we headed upstairs to start our last treatment round for this month. Yesterday was a little bit of a tougher day... Now that Rylie knows what it's like to have your port accessed while your awake she was pretty anxious about it. She in NO way wanted to be there today, and you can't really blame her. Since having her surgery she hates having her shirt off. It seems taking her shirt off is the trigger for her because as soon as I started to take off her shirt she had a total melt down. She knew what was coming and she was not happy about it. The Child Life Specialist did her best to comfort her but Rylie is pretty stubborn and she was in no mood for child's play. There were lots of tears and screams but once she was accessed and given the green light to go play her smile seemed to return. Rylie's new favorite you is her kitchen and she just happen to stumble upon one last week while we were getting her last round of chemo so when she got the go ahead to go back to the chemo bay she was up and at the door in about 5 seconds. The oncology nurses up at primary children's are amazing... they do their best to let the kiddos play and try to enjoy the little things even if they are being injected with poison
It only takes about 30 minutes for Rylie to get her Vincristine so as soon as she was de-accessed she was up and headed for the door! She was not waiting around for anyone... It was all I could do to get our things gathered before she was out the door. She sweetly said by to everyone and headed straight for the elevators. It's so amazing to me... we have spent a lot of time up at Primary Children's since February but the fact that Rylie already knows the drill is mind blowing to me... She's two years old but she walks around there like she owns the place. :)
Chemo days are long, exhausting days for all of us
so we try to throw in a few rewards. I mean, she's two years old so even with a
few tears we've been told she does AMAZING for her age! So in the afternoon we
decided to head over to the new B-Town hotspot Fiiz Drinks. OMG they do not
disappoint! Rylie and I kind of have an obsession with their yummy drinks and those
delicious little crushed ice cubes already! We may already have a slight addiction...
May has been one of the longest months of our
lives... there were things we never ever thought we would have to deal with
that all hit us this month...but we made it! One day at a time, one foot in front of the other...
One month down, 11 months to go!!!
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