NF is...

NF is… Your baby girl starting a 12 month chemotherapy protocol just 2 days after her second birthday.

NF is... hearing doctors say they have never seen a tumor progress so rapidly in just a few short weeks. 

NF is... Hearing we are in "uncharted territory"

NF is... Hearing your daughters sight may never return. 

NF is... Trusting professionals... strangers with your most treasured gift. 

NF is... watching complete strangers inject your baby girl with poison hoping that it will make her tumor disappear. 

NF is… Major surgery with extreme pain lasting weeks and weeks.

NF is… Nausea, constipation, hair loss, mouth sores, and dozens of other nasty chemo side affects.

NF is... learning medical terms most people can't even pronounce let alone spell. 

NF is... endless research studies and clinical trials

NF is… Weight loss and fatigue.

NF is… Lots and Lots of Doctors appointments.

NF is… sitting down once a month for 2+ hours to coordinate work schedules, child care, doctors appointments and NF meetings. 

NF is... missing out on holidays, birthday parties, and fun with friends because you are just to weak. 

NF is... waiting... waiting and hoping medical procedures and treatments work there magic and fix your baby girl. 

NF is... stress and constant worry. 

NF is... FEAR...

NF is... Sharing your struggles with others all in the name of raising awareness

while there is lots of fear and uncertainty with NF there is also some good...

NF is… having faith in a bigger plan, hope for a cure, and appreciation for the things and time we have. 

NF is... Family, Friends, and an amazing support system.

NF is... Gratitude

NF is... A smile after a hard day and a comforting hug from a loved one. 

NF is... Learning to slow down and enjoy all the little things life has to offer.

NF is... making new friends that suffer from the same diagnosis. Finding a support group that will help to lead you through some of the darkest times. 

NF is... believing that one day there will be a cure for NF. It is believing that one day our NF Hero will some day live a life free from pain and doctor’s appointments. NF is believing in the power of awareness! 

To learn more about how you can help raise awareness and find a cure for NF visit The Children's Tumor Foundation